So It Seems Someone Was Wrong

According to a second opinion I don’t have MEN2b after all. More soon, but I do honestly think that a) if you get a diagnosis you aren’t happy with, GET ANOTHER; and b) no matter what, KEEP FIGHTING. Also this: DON’T PUT UP WITH A DOCTOR YOU THINK IS SHITTY; YOU’RE LIKELY RIGHT. More on all this shortly. What I might have is called Cowden’s Syndrome. Unlike MEN2b, this is not necessarily fatal. It is, as I thought, connected to the Elephant Man’s disease. I’d much rather know than not know, and this is decidedly good news. So I’m thrilled in some ways, and yet there are new concerns. It all means, however, that I’m far better off for knowing and that I’m in far better care tonight.

Also, we’re home in Toronto as opposed to being lost in the snow along the 402. FUCK!

More soon—


About johnwylam1957

I'm a poet and teacher now living in Toronto, Ontario, Canada.
This entry was posted in Notes on Living and Dealing with Illness. Bookmark the permalink.

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